I will update with pictures soon but...
We withdrew Chad from school today.
He just can't do it. His head hurts so bad
he can't go to school.
That was DEPRESSING!
Then we went to see his ENT who had placed a call
to his doctor in Seattle. They have decided that the
Cochlear implant is not going to work.
The next step is an ABI Auditory Brain stem Implant.
It is similar looking on the outside to a CI.
It bypasses the cochlea all together and goes
straight to the brain stem.
His doctor had mentioned that was the next step.
I thought it could be done at any time or at least at a
later date. It can't. :(
If you don't use the stuff in the brain for what it is supposed
to be used for then the brain uses it somewhere else.
You have to place a Cochlear Implant or an ABI
within the first 12 months of the tumor removal surgery
or the brain will start taking the nerves etc.
We hit six months today.
The longer you wait the less chance of success.
ABI takes a month to be approved by Insurance, and
the Cochlear Company.
So... we have to decide very soon.
I mean... Chad has to decide very soon,
really within the next two weeks if he wants to
have surgery A G A I N. :(
Recovery from brain surgery is sooooooooo
SOOOOOO SO SO SO SO BAD!
Besides... He was still having pain from
the other two surgeries, that's why we withdrew him.
FYI ABI gives you only sound awareness. Not
word recognition.
THIS IS A TOUGH DECISION.
IT IS A SUCKY DAY!
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